Siebers begins the essay with an allusion to the Graiae Sisters (blind sisters of Medusa) in mythology who possess a single eye ball and six empty sockets. They pass the eyeball among themselves to have a look at the outside world; the hands hold the eye ball and this acts as a metaphor to the experience of people with disabilities (PWD). It becomes the reality of the body where people with disabilities also interchange different organs to perform different function. For instance, deaf hands speak and deaf eyes, listen. Disabled body depicts that all bodies are socially constructed and the societal attitudes determine the reality of every body. This insight was developed after the publication of Autobiography, June 2000 issue of American Quarterly Journal. This publication ended up to be autoethnography, which means one’s record of personal experience in a social context. This proves how the society deems a body as abled or disabled. Body becomes a site of oppression, thereby linking with gender theory, race theory, etc.
Social constructionism exists in weak and strong forms. Weak form consists of dominant ideas, attitudes and customs of the society in regard to bodies. For instance, in an ableist society, civil rights legislation is unnecessary because they assume that PWD do not want to meander with the mainstream. On the other hand, strong constructionism does not rely on human ignorance but is based on a linguistic model where sign precedes representation. It refers to the social and cultural markers that shape societal perceptions of PWD, resulting in how they are viewed and treated. Strong constructionism stresses that political ideologies and cultural belief anchor their authority on natural objects.
Michel Foucault, a French critic, defined biopower as the force that controls human bodies through subjection. Techniques of biopower are statistics, demographics, eugenics, medicalization and sterilisation. These techniques combine knowledge and power, but also treat human body as a subject that is linguistically represented by social ideologies. Judith Butler, an American critic, distinguishes bodies as bodies in pain and abject bodies. Abject bodies are miserable and exist outside the domain of subject as their desires cannot be incorporated into societal norms. They live in the realm between accepted and unaccepted. According to Rosemarie Garland Thomson, disabled bodies are freak show as they are unorthodox bodies that refuse to be normalised.
Disability exposes the different constraints on bodies by societal norms. Facilities such as staircase for public use convey the message that the society is ableist in nature, ignoring the needs of PWD, thus displaying disability as socially constructed. On the other hand, disability has its own problems where the reality of the body is with its own limitation. This is avoided and performance of an individual in the society is prioritised over the reality of the body.
Foucault compares a pre-modern soldier and a modern soldier by insisting that the pre-modern soldier is strong and fit, whereas the modern day soldier has an unsuitable body with limitation that is supported by weapons. The modern day soldier represents the docile body; docility resembles disability and so has to be transformed and improved. Body theory looks at the docile body as an evil to be eradicated and mirrors the attitude of the ableist society. Lennard Davis argues that disability is a nightmare for the ableist society. Proper representation of disability is necessary to understand disability. Consequently, this will help in tackling political issues such as access to citizenship and voting rights.
Pain and more Pain: The mainstream believes that PWD is a stable population. But only 15% of the world’s population is born with impairment. Most people become disabled during the course of life, yet, the mainstream does not easily accept the disabled body. Pain is a subjective phenomenon and so it becomes the site to describe individuality which is an unhealthy representation. It is because pain must be communicable for better understanding. The incommunicability of pain reinforces the hyperindividuality, where every person with disabilities is confined into separate bubbles of pain. This isolation further marginalises PWD. Medical science catalogues disabilities by identifying distinctive features, thereby individualising PWD. No two individuals have the same diagnosis, symptoms and treatment. This robs PWD from a sense of political community. Pain is a tool to enforce the norms of the society as it is believed to be controlled by the ailing.
According to Butler‘s body theory, pain is not physical but is based on guilt and social repression. Siebers believes that pain is both psychological and physical. It is psychological because able bodied bully them and it is physical because of the reality of the body, Donna Haraway’s cyborg theory looks at disabled body as a mutation of machine and organism. This theory assumes that people who are paired with devices are powerful than the able bodied. Siebers argues that cyborgs are powerful super human. On the other hand, Haraway’s comparison falls short as PWD experience sub-human status. Thus, disability is mythologised as an advantage because of their reliance on gadgets. PWD thereby become sources of fear for the able bodied. Reality of the body is such that the PWD cannot navigate the society without the device. Physical pain is unpredictable and individualistic; it is not a friend to humanity as it marginalises PWD further and makes the experience of suffering difficult to believe.
These Blunt, Crude Realities: the practical difficulty of being disabled is the reality of the body. The experience of PWD displays their pain and humiliation. Cheryl Marie Wade narrates her body related experience of having her privacy invaded. She individualises pain, but represents the suffering of PWD by using the plural ‘We’. The political plural brings in a sense of community to help obtain rights in the society. PWD form communities based on their healthcare needs and need for access to rights in the society.
Siebers debates on assisted suicide, abortion and genetic research. He highlights how disability is seen as an evil to be eradicated and the economic policies portray PWD as a small needy group. Siebers discusses how body is capable of influencing the society. The disabled body has three major representation as being powerful (cyborg), deserving sympathy and needy because of disease and being villainic. None of these improve the status of disabled in the society. PWD understand that disability is part of their life, and thus try to function with it. They need a place in the world, where they are not judged or dominated by their caregiver and other able-bodied people. Siebers concludes by insisting on the need for the right mode of representation to obtain political rights in the mainstream.